What To Expect
2025 Caregivers Summit Theme:
The Heart of a Caregiver: Balancing Mental Wellness, Advocacy, and Legacy
This year’s Caregivers Summit is rooted in a moment of deep vulnerability and shared truth. It began with one caregiver’s courageous story facing a personal health scare while caring for her adult children and opened the door to an outpouring of experiences from others who had similarly placed their well-being on hold for the sake of those they love.
From this honest and heartfelt discussion came a unified theme:
The Heart of a Caregiver: Balancing Mental Wellness, Advocacy, and Legacy.
This theme recognizes the full humanity of the caregiver, the fierce advocate, the emotional anchor, the planner, and the protector. It challenges us to care for the one who cares for everyone else. It also speaks to the critical need for both present-day support and future-focused planning.
Summit Highlights Will Include:
- A spotlight on the caregiver whose story inspired this year’s theme
- Real talk on burnout, boundaries, and mental health
- Workshops on navigating medical systems and advocating for care with confidence
- Sessions focused on legacy planning, including legal, financial, and emotional preparedness
- Peer groups and healing spaces for reflection, release, and renewal
The Heart of Caregiving is more than a theme—it's a call to honor the whole human behind the caregiver role. It acknowledges the quiet heroism, the weariness, the resilience, and the deep need for community and care.
Caregivers often give silently and endlessly—but this summit is a space where they are seen, heard, and honored. "The Heart of a Caregiver" is not only about enduring love and sacrifice, but also about finding balance, embracing self-worth, and building a legacy that lasts.
Together, we will make space for caregivers to rest, reconnect, and rediscover themselves. Join us in lifting up the caregivers who hold our community together—because their hearts deserve care, too.
MEET THE HOSTS
About The
Sickle Cell Community Consortium
The Sickle Cell Community Consortium is a US-based non-profit formed in 2014 to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers. These stakeholders collectively form the General Assembly of CBOs and Advocates, the decision-making body of the Consortium. The Consortium acts as an organizing entity providing the framework for the stakeholders of the General Assembly to apply a model of Collective Impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the CBO, Community, and Corporate partnerships best equipped to implement those strategies to achieve significant and sustainable change.
About
DiscoveringMoorer2Life
DiscoveringMoorer2life is an emerging Community Based Organization (CBO) that operates as a 501c3 non-profit organization. It was founded in 2022 by Andre and Cynthia Moorer to educate, elevate, and empower the Black and Brown communities about those who live with Chronic Illnesses and Rare diseases.
DiscoveringMoorer2 life is a spiritual awakening birthed after the death of our son who lived with Sickle Cell Disease, (classified as a chronic illness as well as a rare disease).
Our mission is to curate innovative programs and services that will enhance the lives of people of color living with chronic illnesses or rare diseases.
We are intentional about the Quality of Life in transitioning millennials throughout adulthood, as they are profoundly affected by health disparities, cultural and implicit biases, and overall lack of health equity.
About
The B Strong Group
The B Strong Group was created to support those with sickle cell disease and their caregivers in the Columbia area. We advocate for, empower, and uplift our sickle cell warriors by spreading awareness of the disease, educating the community and engaging volunteers.