What To Expect
The 2026 summit will explore the many ways caregivers educate, lead, collaborate, advocate, and care for families affected by sickle cell disease.
Tentative summit topics and activities include:
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Support for military families caring for loved ones with sickle cell disease
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The experiences of foster families affected by sickle cell disease
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Global caregiving perspectives
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Support for aging caregivers
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Caregiver stress, wellness, and mental health
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Alternative income options and entrepreneurship
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Updates on sickle cell treatments and emerging therapies
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Building caregiver support systems and finding your village
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Family emergencies and caregiving through crisis
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Sickle cell disease and hearing loss
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Organ damage and bone health
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Caregiver storytelling and shared experiences
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Guided networking, breakout rooms, and connection activities
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Sponsor activations and downloadable caregiver resources
Attendees will also participate in wellness activities, caregiver connection experiences, panel discussions, reflection exercises, sponsor sessions, and a community celebration.
All sessions, presenters, and agenda details are subject to change.
MEET THE HOSTS
About The
Cleverly Changing
Cleverly Changing is a family education, caregiving, and advocacy platform founded by award-winning author, speaker, caregiver, and sickle cell advocate Carley “Elle Cole” Cavins.
Since 2010, Cleverly Changing has provided families with practical resources and conversations focused on caregiving, health and wellness, parenting, education, financial literacy, and advocacy.
Rooted in lived experience, the platform helps families feel more informed, supported, and confident as they navigate caregiving and everyday life.
About
The B Strong Group
The B Strong Group was created to support those with sickle cell disease and their caregivers in the Columbia area. We advocate for, empower, and uplift our sickle cell warriors by spreading awareness of the disease, educating the community and engaging volunteers.
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Our Mission is to spread awareness of sickle cell disease through education, advocacy, and empowerment.
About
DiscoveringMoorer2Life
DiscoveringMoorer2life is an emerging Community Based Organization (CBO) that operates as a 501c3 non-profit organization. It was founded in 2022 by Andre and Cynthia Moorer to educate, elevate, and empower the Black and Brown communities about those who live with Chronic Illnesses and Rare diseases.
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DiscoveringMoorer2 life is a spiritual awakening birthed after the death of our son who lived with Sickle Cell Disease, (classified as a chronic illness as well as a rare disease).
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Our mission is to curate innovative programs and services that will enhance the lives of people of color living with chronic illnesses or rare diseases. ​
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We are intentional about the Quality of Life in transitioning millennials throughout adulthood, as they are profoundly affected by health disparities, cultural and implicit biases, and overall lack of health equity.
Thank You Sponsors!
